Our goal is to provide the most up-to-date, extensive, and accurate medical information available related to FAVA.  Members of Project FAVA's Medical Advisory Board provide advice and guidance to our organization as we fulfill this goal.

 

All medical information on this website has been developed with oversight from members of Project FAVA's Medical Advisory Board.

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Denise Adams, MD

 

Denise Adams, MD is an academic Pediatric Hematologist-Oncologist and a leading expert in the field of vascular anomalies.  She currently leads the Comprehensive Vascular Anomalies Program at Children's Hospital of Philadelphia (CHOP).  Before joining CHOP, she served as a Co-Director of the Vascular Anomalies Center at Boston Children's Hospital and an Associate Professor of Pediatrics at Harvard Medical School. Immediately prior to that, she was the Medical Director of the Hemangioma and Vascular Malformation Center and Director of the Pediatric Hematology/Oncology Fellowship Program at Cincinnati Children's Hospital Medical Center. Previously, she was a faculty member at Duke University and the University of Vermont.  Dr. Adams is actively involved in clinical and translational research in the field of vascular anomalies, including exploration of various medical therapies for the treatment of FAVA and other vascular anomalies.  She has received several awards for her instruction and mentorship of medical students, residents, and fellow physicians.  In addition, she has authored many publications and has been an invited speaker, both nationally and internationally, on the subject of vascular anomalies.         

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Elizabeth Chao, MD, FACMG

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Elizabeth Chao, MD, FACMG is a clinical and molecular geneticist.  She is the Director of Molecular Genetics and an Assistant Professor of Genetics and Genomics in Pediatrics at the University of California, Irvine. Dr. Chao served previously as Chief Medical Officer at Ambry Genetics, where she led the development and launch of the first commercially available whole exome sequencing test for rare pediatric diseases in 2011.  She has authored numerous publications, including on clinical genomics, whole exome sequencing, and DNA variant classification.  Dr. Chao is experienced in the development and implementation of genomic testing to manage rare pediatric diseases.  Her research focuses on novel methodologies for the interpretation of genomic variation and the translation of DNA sequence information into improvements in clinical care.    

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Craig M. Johnson, DO

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Craig Johnson, DO is an academic Pediatric Vascular and Interventional Radiologist and an imaging and image-guided therapy expert in the field of vascular anomalies.  He currently leads the Nemours Florida Vascular Anomalies Program at Nemours Children's Hospital in Orlando, FL.  He serves as Chair of Radiology and Enterprise Director of Interventional Radiology for Nemours Children’s Health System and is an Associate Professor and Education Chair of Radiology at the University of Central Florida College of Medicine. Before joining Nemours, he assisted leading the Birthmarks and Vascular Anomalies Center at Children's Hospital of Wisconsin. Dr. Johnson was trained in Pediatric Radiology and Pediatric Interventional Radiology at Boston Children’s Hospital and Harvard Medical School. Dr. Johnson is passionate about the multidisciplinary model in providing the best care for complex vascular anomalies including FAVA and in developing algorithms for the best outcomes in these rare disorders utilizing the best medical, interventional, and surgical technologies. He is actively involved in clinical research in the field of vascular anomalies, including the formation of a multi-institutional group to explore various therapies and outcomes in the treatment of FAVA.  He has given numerous lectures and podium presentations nationally and internationally on the topic of vascular anomalies and image-guided therapies and authored many publications on vascular anomalies. 

 

 

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